Aims & Objectives
through Genetic Counseling, International Conferences, Seminars,
Workshops, Brochures, Leaflets, Posters, Lectures to target audiences at
college level and also involving the Print and Electronic Media to
create awareness about this cause.
better than cure which is why the society screens the carriers by simple
blood test and also offers the facility of Prenatal diagnosis to the
pregnant mother determine whether the baby is Thalassaemic or Normal.
The Society is a pioneer in this field and was the first to carry out
Prenatal Diagnosis for Thalassaemia in Pakistan.
One of the principal
Goals of the Society is the treatment of Thalassaemic children
The Society has established a Thalassaemia Center in Peadiatric
Department at Sir Ganga Ram Hospital, Lahore where Thalassaemic children
are given the following treatments free of cost:
The body of a
Thalassaemic cannot produce red blood cells, which means a blood
transfusion is required every 3-4 weeks. The Society collects,
screens and transfuses blood to patients coming to the Thalassaemia
Due to repeated blood
transfusions iron gets accumulated in the body. This excess iron
must be removed from the body. The Thalassaemia center does this by
using 'Desferal' injection given through a chelation pump. Each
injection is administered in 8 hours and must be given 20 days a
month. These patients are also given treatment for other
Thalassaemia related complications such as splenectomy, infections,
Thalassaemia is a
disease, which not only effects the patient but also leaves a
devastating psycho-social effect on the family of the patient. The
society also organises a Patient Support Group to help the families
of patients pull through this traumatic experience.